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NICU

Your Preemie Is In The NICU – What Can You Do?

May 13, 2017 by basilpuglisi@aol.com Leave a Comment

Your feelings are tied up in that tiny little preemie bundle, and you have a hard time comprehending this small, wrinkled resemblance of a baby that is attached to every conceivable contraption…could belong to you. But when your heart is broken in more places then you could ever dream possible, and waiting seems endless, you are harshly welcomed into the world of parenthood.

It is truly staggering when you consider that an average of 1300 premature babies are born every day in the United States. If you are reading this article, you are probably the parent of one of these preemies. With so many things in this new out-of-control world of “living” in the NICU, what can you control?

Be There For Your Preemie

For you, the first thing you can control is being there for your baby. It may seem like you are standing around (in the way) not being helpful, but you are doing an important job. Your voice, your touch, your prayers, and your deep love is something your preemie needs and craves as he or she is trying to get stronger. Your baby can see you, hear you, and/or feel you. You are important and you are needed.

It is just as important that you are there mentally. Everything is so “out-of-body” and surreal, but you can begin focusing on the essentials of your preemie’s care. Learn about your baby’s routine, his reactions, and health limitations. Keep yourself informed about everything and you can then notice the small things that are overlooked in you preemie’s care. You can then request that these things be taken care of from a knowledgeable perspective, not just as a panicky parent.

Knowledge Is Power

“Knowledge Is Power“ is a common saying. An important one when you consider the fact that you are now your baby’s cheerleader and coach for the rest of his or her life. Begin learning all that you can about your preemie and her specific medical needs now and in the future. Books, articles (like this one), your baby’s doctor, reputable websites, and other experienced preemie parents are wonderful sources of inspiration, information, and education for you.

It may seem difficult to find the time when you are so stretched, but go slowly when you can find that time and keep at it. Make small goals for yourself. Remember, if you set goals, you will get much farther than if you don’t. You can do some of these things in the NICU at your baby’s side.

Look To The Future

Last, look to the future. It may seem silly to plan out what kind of parent you want to be for the next 18 years, but long-term goal setting is a very worthwhile occupation for any parent. Right now as time seems to drag on endlessly, it is difficult to see that time will soon pick up speed and the years will fly by. Practice little things now, like patience, and it will be easier when your preemie is older.

How are you going to react to your preemie when he or she does something that makes you mad, upset, frustrated, angry, happy, or laugh? How will you discipline and praise your baby? What kind of people will you let your baby be around, and not? Do you have any family traditions you would like to start? What healthy habits do you want to instill in your preemie?

If you keep your mind busy with all of the things you can do for your new preemie, then it is harder to fall into constant anxiety. Try not to worry (though it seems an impossible task) about “will my baby make it”, or “what kind of problems will my baby have”, or “I can’t do this anymore”, or “Is my baby in pain?”, and whatever else is plaguing you. Stay focused on your goals, and keep your mind thinking positive thoughts even if you are tempted to do otherwise.

Remember, you are the best parent your preemie could ever have, and your baby is depending on you. You can do it if you take one day at a time. At times you may even have to break it down by minutes taking one crisis at a time. You are not alone, and you can forge your way through this trial as many parents have done before you.

Filed Under: Baby Database PLR Sourced Tagged With: article, articles, babies, baby, clothes, clothing, hospital, Isolette, micro, micropreemie, NICU, preemie, preemies, premature, premature baby, prematurity, premie, premies, preterm

I saw Miracles

October 7, 2015 by basilpuglisi@aol.com Leave a Comment

When a woman is pregnant, her body changes. It changes to conform to the little human that is growing inside of her. It’s a beautiful thing…. pregnancy. It’s a time when you start taking those weekly photos, and downloading every pregnancy app possible and start clicking on due date clubs, breastfeeding clubs, meds or no meds clubs, first time mom’s or more than ones…. you join any and all the clubs you can because you want to be a part of it all. You want to be there.. and chat and get excited with all these other mommies. You even have this fantasy of meeting or knowing another pregnamt mom and becoming best friends with her because then your babies will be best friends for the rest of their lives… at least that’s what I wished.

I had two cousins and three good friends who were pregnant the same time as me. We all planned baby showers and maternity shoots. We all went shopping as soon as we found out we were pregnant because we all wanted to be the first one to buy something for our little nugget. A keepsake to save forever.

But my pregnancy became something else when we received the fetal diagnosis. My pregnancy was no longer this happy occasion. It was no longer this exciting thing. It’s was now a tragedy. It suddenly became this scary and awful thing to happen to us. This pregnancy became sad. And I became numb. For many many weeks I was just numb.

I saw Miracles

I remember each doctors appointment we went to became such a chore for me. I hated  going to the doctors. We had to go every week, sometimes twice a week for check ups. I was so afraid I wouldn’t hear a heartbeat on the monitor. I feared that the ultrasound would show that my babies were dead. I literally hated going. From the moment we left the doctors office to the 3 to 7 days we went back and I saw and heard heartbeats, I held my breath. I couldn’t breathe. I couldn’t think. I could barely function. All that kept me going was God’s mercy, His love and His strength.

I’d smile at everyone else’s pregnancy quirks. I’d even LIKE and comment ‘oh how cute’ at all their ultrasound pics and maternity photos. I oohed and awwwed along with everyone else at their lavish dream come true baby showers. And about 75% of me was really happy for then. Honestly!  Pregnancy is an amazing experience…. but at that time, I hated everything about it. That 25% of me just wished I could run and hide forever.

And although they were ALL due months before me, my babies came into this world fighting to stay in it. And this is where my life took a drastic turn. Suddenly I wasn’t pregnant with these sad little sick babies anymore.  Suddenly I was the mother of these two incredibly amazing and strong and resilient preemie baby’s!  Suddenly I was thrust into this unknown world called The NICU. Suddenly I became a NICU mother.

I… had… no… idea…….

I had no idea the Lord chose me… He chose ME to witness miracles. During my pregnancy I had no idea. I didn’t seee what the Lord was preparing me for. I didn’t see what my purpose was. And still to this day I don’t really know exactly what my purpose is.  But I see now. I see that everything that happened during my pregnancy wasn’t something sad that was happening to us. It wasn’t this great tragedy. It was a blessing… it was a MIRACLE. My mind was so clouded by sadness and the dream I had had about having a son. I had hoped and wished and prayed for so many years for a boy that I had planned everything. I planned what my pregnancy with a son was going to be like. From the baby announcement to the baby royalty-prince themed baby shower. I had it all planned out.

I should have known the Lord had other plans. I should have realized early on that the Lord was going use me and use US in a way that we may never fully understand. He is using us now to show the world what prayer can do. He is using us to show the world that miracles do happen. That no matter how bad something is, no matter how bad a disease the doctors will diagnose, He is a Healer.

I was so incredibly blessed to be a witness, everyday, to my babies growing outside of my womb. God’s creation. While everyone was still pregnant and complaining about how big they are, their feet swelling, their increased appetite, their babies kicking them in their ribs… I got to see mine in real life. I saw them in person instead of a 4D video. I saw what they looked like. I saw them smile for the first time. I saw them open their eyes to an amazing world for the first time. I saw them fight through breathing tubes to be taken off within weeks of their premature birth. I saw their fingers moving and curling and searching for mine. And then I felt their little fingers, fingers as small as a q-tip, wrapped around mine. I couldn’t hold my daughter for 2 weeks and my son for 4 weeks… but I did. Instead of feeling their kicks inside of me, I played with their toes while I held them.

As hard and difficult as the nicu journey was for me…. it was the most amazing and life changing experience I will never forget. I look at life completely differently. And I am forever grateful to the nurses and doctors who helped us during my pregnancy, time in the nicu and for all the support after we left.

So I end NICU Awareness Month with To God Be The Glory ♡ We witnessed miracles.s21.jpg

Guest Author:
Angelina Castleberry writes on her blog All the Days the Lord has Made 4 Me. You can find an issue close to her heart at Made for a Miracle, a website for a group dedicated to helping families through the NICU journey with prayers and support.

 

Filed Under: Blog, Newborn Tagged With: icu for infants, miracles, NICU

Just another one of those days

August 26, 2015 by basilpuglisi@aol.com Leave a Comment

Today was just another one of those days. The kind of day where I just want to be left alone. I don’t want to interact with anybody. I don’t want to see anybody. I don’t want to talk to anybody. I don’t want to be around anybody. I just want to be left alone. I want to crawl back into bed, put the blankets over my head and sleep. I want to sleep. I want to take a mommy time out. I wish time could pause for, like, a week. Does anyone else ever feel this way??

It was Just another one of those days

I was diagnosed with Post Partum Depression back in August. It was actually really funny when the case manager told me the results of my little file000324750683“psych” test… she was like.. “well who can blame you?! you have twins in the NICU!!! hahahaha” … I remember I sat there… having just finished crying hysterically, and the only thought in my head was, ‘she’s laughing… this lady is laughing at me’….

….and that’s how I was diagnosed with post partum depression…with someone laughing at me. Maybe she wasn’t laughing AT me. But she was laughing because OF me. I wanted to strangle her right there in that room. All the anger I had at the doctors.. at my situation.. then to be shuffled into this 8 x 10 foot meeting room, just to be sat in the corner and laughed at… I was angry.

I’m STILL angry. I’m angry today. I’m angry right now. And I don’t really know why. I’m sad. I’m annoyed and irritable…at everything and towards everybody. There are people that want to help us.. people that want to help me… and I just want to be left alone. I don’t want anybody’s help. I don’t want anyone’s advice. I don’t want people looking at me.. or talking to me.. just let me be. Let me be silent. Let me sit on the couch all day and do nothing. Let me sleep. Let me eat. Let me drink. Let me be without asking me questions. Let me be without wondering if I’m okay. Let me be!

<<deep breath>>

<<deep breath>>

<<deep breath>>

That’s not me. That’s not who I am. That’s not how I am. I pray. I pray for God to get me out of this. I pray for God to give me the strength to get me past this day. Get me past feeling like this. Get me moving forward and feeling better. I am normally a “people person”. I like going out and having fun. I like going out with friends. I have always been the party planner. Birthdays, Girls nights out, Girls night in, play dates and slumber parties. I plan those. I have those. I love those.

I pray one day God can get me out of this depression. I know there is a lesson in everything He has for me. I just pray for strength. I pray to just get through it. I don’t need doctors or medication. I just need God!

My family needs me. My babies need me.

If you’re going through depression… you’re not alone. Please share your thoughts. I’m here for you and I know you are here for me.

God Bless

Author:
Angelina Castleberry writes on her blog All the Days the Lord has Made 4 Me. You can find an issue close to her heart at Made for a Miracle, a website for a group dedicated to helping families through the NICU journey with prayers and support.

 

Filed Under: Blog, Newborn Tagged With: Just another one of those days, NICU, post-partum depression, postpartum depression, PPD

Save a Preemie, Become a Milk Donor!

August 17, 2015 by basilpuglisi@aol.com 1 Comment

MMBNE donor 1.jpgDid you know that when a mother’s own milk is unavailable, donor human milk has been proven to improve the health and survival of fragile infants? Preterm infants are most in need of human milk, yet due to stress and other complications, their moms are the least likely to be able to provide their own milk in the earliest days of life.  This is where milk donation and mothers’ milk banks come in.

Mothers with a surplus of milk can give premature infants a better chance to grow and thrive. Donor milk is especially protective against a life-threatening condition, common in preemies, called necrotizing enterocolitis (NEC). A human milk diet is estimated to lower the risk of this condition by a whopping 79%!

Any nursing mom can be screened to become a donor through a nonprofit community milk bank. The process is easy, similar to donating blood, and the deep personal satisfaction that comes from helping improve the health of another baby is great.
New Yorkers wishing to donate can contact Mothers’ Milk Bank Northeast (MMBNE), a nonprofit milk bank operating under the guidelines of the Human Milk Banking Association of North America (HMBANA), whose mission it is to provide safely pasteurized donor human milk to babies in need throughout the Northeast. MMBNE has been serving New York’s most fragile babies since 2012, and has since assisted hundreds of mothers from across the state, and in all 5 NYC boroughs, to generously donate their extra milk!

MMBNElab.jpg

The four simple steps to donating:
  • ​10 minute phone screening
  • online health history form and consents
  • free blood draw (paid for by MMBNE)
  • free shipping of milk (MMBNE provides insulated boxes and pickup by FedEx with overnight shipping to the lab) *convenient Brooklyn depot also available for donors who wish to drop off their milk
Previously frozen milk is accepted as long as it has been stored for no more than 3 months in a refrigerator freezer or 6 months in a stand alone freezer. There is no limit to how much one can donate, but one must commit to providing a minimum of 150 oz (about 30 bags) over time. The minimum amount does NOT have to be sent all at once, and is waived for bereaved mothers.
MMBNEDonor freezer 1.jpg
New York City families have greatly benefited from donor milk. In addition to nine other hospitals across the state, NYU Langone Medical Center, Bellevue Hospital Center, and Maimonides Medical Center now offer MMBNE donor milk as standard of care in their NICUs and nurseries. MMBNE is working closely with many more hospitals, particularly in NYC, to meet the requirements necessary to prescribe donor human milk to their patients.

Author:
Amber Star Merkens is the New York Outreach Coordinator for Mothers’ Milk Bank Northeast and Postpartum Doula serving families in Brooklyn, Queens, and Manhattan.To learn more about donating and receiving milk, call MMBNE’s main office at 212-993-1566, visit their website, or like their Facebook page.

Filed Under: Blog, Newborn Tagged With: babies, breast milk, breastfeeding, donor human milk, milk bank, NICU, nonprofit, nursing, preemies, pumping

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